期刊
NATURE AND SCIENCE OF SLEEP
卷 13, 期 -, 页码 1701-1710出版社
DOVE MEDICAL PRESS LTD
DOI: 10.2147/NSS.S322796
关键词
narcolepsy; pediatrics; quality of life; validation study
资金
- National Natural Science Foundation of China (NSFC) [82020108001, 81420108002]
The study translated and validated the Narcolepsy Quality of Life Instrument with 21 questions (NARQoL-21) in Chinese pediatric patients, finding that the Chinese version demonstrated good reliability and validity, despite differences in factors compared to the English version.
Objective: This study aimed to translate and validate the narcolepsy quality-of-life instrument with 21 questions (NARQoL-21) in Chinese pediatrics with narcolepsy. Methods: NARQoL-21 was translated following the 10 steps of scale translation. The translated version was tested by exploratory factor analysis (EFA), confirmatory factor analysis (CFA), known-group validity, criterion validity, Cronbach's alpha and test-rest reliability. Results: The Chinese version of NARQoL-21 consisted of two factors: (psychosocial factors and future outlook factor), including 20 items. EFA yielded 3 domains for psychosocial factors and 1 domain for future outlook factor. The Chinese version had a negative correlation with the overall Modified Epworth Sleepiness Scale (r = -0.518, p<0.001) and meaningful difference in score between drug naive and treated group (p<0.05). The Cronbach's alpha coefficient was higher than 0.7 and intraclass correlation coefficient (ICC) ranged from 0.75 to 0.905, indicating that it had good reliability. Conclusion: The Chinese version of the NARQoL-21 is available and can be used to evaluate the health-related quality of life (HRQoL) of pediatric narcoleptics, despite that there is a shift in factors compared to the English version due to cultural differences. Future studies are recommended to further validate the scale in Chinese pediatrics with narcolepsy.
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