4.7 Article

Health-Related Quality of Life Issues Experienced by Thoracic and Breast Sarcoma Patients: A Rare and Understudied Group

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Incorporating the Patient Voice in Sarcoma Research: How Can We Assess Health-Related Quality of Life in This Heterogeneous Group of Patients? A Study Protocol

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Summary: Sarcomas are a rare and heterogeneous group of tumors, making it challenging to develop a specific HRQoL measurement instrument. This study aims to create a list of HRQoL issues relevant to sarcoma patients and determine a strategy for HRQoL assessment through an international, multicenter approach. By involving sarcoma patients and healthcare professionals in rating and prioritizing these issues, a tailored framework for HRQoL measurement in sarcoma patients will be established.

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