期刊
出版社
MDPI
DOI: 10.3390/ijerph19010452
关键词
grief; bereavement; suicide; traumatic death; research participation; ethics; research ethics
资金
- National Health and Medical Research Council Early Career Fellowship [GNT1157796]
- Early Career Researcher Grant of The University of Melbourne [ECR1202020]
- National Health and Medical Research Council Investigator Grant [GNT1173126]
This study investigates the short-term impact of research participation on adolescents, parents, and clinicians who have experienced the loss of a loved one due to suicide or other traumatic death. Most participants did not experience distress and found participation helpful, recommending others to participate as well. A few participants reported some distress related to anxiety and unpleasant memories. The study suggests that bereaved adolescents, parents, and clinicians can safely participate in research interviews regarding their grief experiences after suicide, finding value in sharing their experiences.
There are concerns that involving adolescents bereaved by suicide and other traumatic death in research may cause distress and harm. However, no study has investigated such bereaved adolescents' research experiences. In addition, no study has looked at the experiences of parents and clinicians as participants in adolescent suicide and traumatic death bereavement research. This study aimed to explore the short-term impact of research participation experienced by adolescents, parents, and clinicians. A total of 61 participants (adolescents, n = 17; parents, n = 12; clinicians, n = 32) filled out a short survey within two weeks of having taken part in a qualitative interview study. Data were analyzed descriptively. Most participants had experienced no distress while participating and no negative effects of participating; rather, participation was experienced as helpful for them and they would highly recommend participating in a study like this to others. A few adolescents and parents reported some distress, related to anxiety about participation and the unpleasantness of grief memories. The study clearly indicates that bereaved adolescents, parents and clinicians can safely participate in research interviews regarding their experiences of grief and help after suicide, generally valuing the opportunity to share their experience. To prevent and mitigate potential distress, training of research staff and implementation of appropriate participant distress protocols are imperative. Future studies could include longitudinal follow-up of participants to assess any longer-term consequences.
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