期刊
BURNS
卷 41, 期 7, 页码 1405-1419出版社
ELSEVIER SCI LTD
DOI: 10.1016/j.burns.2015.05.021
关键词
Cicatrix; Hypertrophic; Outcome assessment; Quality of life; Patient reported outcomes; Health and wellbeing; Burns
资金
- Queensland Children's Medical Research Institute
- Central Queensland Hospital and Health Service
- Queensland Health, Health Practitioner Research Scheme
Introduction: No burn-scar specific, health-related quality of life (HRQOL) measure exists. This study aimed to develop a patient-reported, evaluative HRQOL measure to assess the impact of burn scarring in children and adults. Method: Semi-structured interviews, content validation surveys, and cognitive interviews were used to develop and test content validity of a new measure - the Brisbane Burn Scar Impact Profile (BBSIP). Results: Participants comprised Australian adults (n = 23) and children (n = 19) with burn scarring; caregivers of children with burn scarring (n = 28); and international scar management experts (n = 14). Items distinct from other burn scar measures emerged. Four versions of the BBSIP were developed; one for children aged 8-18 years, one for adults, one for caregivers (as proxies for children aged less than 8-years), and one for caregivers of children aged 8-18 years. Preliminary content validity of the BBSIP was supported. Final items covered physical and sensory symptoms; emotional reactions; impact on social functioning and daily activities; impact of treatment; and environmental factors. Conclusion: The BBSIP was developed to assess burn-scar specific HRQOL and will be available at http://www.coolburns.com.au under a creative commons license. Further testing is underway. (C) 2015 Elsevier Ltd and ISBI. All rights reserved.
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