Multijurisdictional Analyses of Birth Defects: Considering the Common Data Model Approach

Article Pediatrics

Ten-Year Survival of Children With Congenital Anomalies: A European Cohort Study

Svetlana Glinianaia et al.

Summary: This study investigates the survival up to age 10 for children born with major congenital anomalies in Europe from 2005 to 2014. The study finds that children with isolated structural anomalies have relatively high survival rates, while the survival rates for children with Down syndrome are associated with the presence of other anomalies.

PEDIATRICS (2022)

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Article Public, Environmental & Occupational Health

Prevalence and mortality in children with congenital diaphragmatic hernia: a multicountry study

Maria D. Politis et al.

Summary: This study analyzed the prevalence, mortality, and time trends of children with congenital diaphragmatic hernia (CDH) using data from 25 hospital-and population-based surveillance programs in 19 countries. The study found a slight increase in CDH prevalence between 2001 and 2012, but a decrease in mortality rates over time. Most deaths due to CDH occurred within the first week of life.

ANNALS OF EPIDEMIOLOGY (2021)

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Article Developmental Biology

Survival of infants born with esophageal atresia among 24 international birth defects surveillance programs

Jane C. Bell et al.

Summary: The study found that the survival rates for infants with esophageal atresia were 89.4% at 1 month, 84.5% at 1 year, and 82.7% at 5 years. Infants with additional anomalies or chromosomal/genetic syndromes had lower survival rates compared to those with isolated EA. There was an improvement in 1-month survival rates for EA patients from the 1980s to the 2010s.

BIRTH DEFECTS RESEARCH (2021)

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Article Medicine, General & Internal

EUROlinkCAT protocol for a European population-based data linkage study investigating the survival, morbidity and education of children with congenital anomalies

Joan K. Morris et al.

Summary: The EUROlinkCAT study investigates the health and educational outcomes of children with congenital anomalies in their first 10 years of life, using a European network of registries to link data and perform meta-analyses. The study aims to provide evidence to improve healthcare and reduce health inequalities in Europe.

BMJ OPEN (2021)

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Article Public, Environmental & Occupational Health