期刊
JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION
卷 29, 期 5, 页码 964-969出版社
OXFORD UNIV PRESS
DOI: 10.1093/jamia/ocab281
关键词
international clinical quality registry; process evaluation; collaborative working group; documentation; audit and feedback; shared-learning
类别
资金
- Movember Foundation
- CIHR Foundation [143237]
The TrueNTH Global Registry (TNGR) aims to improve patient outcomes for localized prostate cancer by collating data from healthcare institutions across multiple countries. A systematic evaluation of supporting documents and consultations with local institutions resulted in four areas of improvement.
Since 2017, the TrueNTH Global Registry (TNGR) has aimed to drive improvement in patient outcomes for individuals with localized prostate cancer by collating data from healthcare institutions across 13 countries. As TNGR matures, a systematic evaluation of existing processes and documents is necessary to evaluate whether the registry is operating as intended. The main supporting documents: protocol and data dictionary, were comprehensively reviewed in a series of meetings over a 10-month period by an international working group. In parallel, individual consultations with local institutions regarding a benchmarking quality-of-care report were conducted. Four consensus areas for improvement emerged: updating operational definitions, appraisal of the recruitment process, refinement of data elements, and improvement of data quality and reporting. Recommendations presented were drawn from our collective experience and accumulated knowledge in operating an international registry. These can be readily generalized to other health-related reporting programs beyond clinical registries.
作者
我是这篇论文的作者
点击您的名字以认领此论文并将其添加到您的个人资料中。
推荐
暂无数据