A little monster inside me that comes out now and again: endometriosis and pain in Austria

The topics of endometriosis and pain imply far-reaching problems for women's health. Using a qualitative research approach, this paper addresses the subjective experience and effects of pain, the methods for dealing with these issues, and the needs of affected women in Austria. Data were collected by problem-focused interviews conducted with ten women suffering from endometriosis, which were later transcribed and subjected to qualitative content analysis. Findings are therefore described using content-related categories. Results show that negative thoughts and feelings like fear, despair, and anger are associated with endometriosis and pain. Moreover, predominantly negative impacts and changes are found in various areas of life, such as the well-being and psyche of those affected, their attitude towards life in general, partnerships, social life, leisure time and work-life balance. In dealing with endometriosis and pain, both Western biomedicine and complementary medicine treatments are used. Support from one's inner circle of friends and exchange and interaction with others affected by the disease are seen to be invaluable. Attending physicians as well as patients themselves and their private, social, and working environment should encourage open communication about endometriosis and the related pain.

Automated summary

This qualitative research study explores the subjective experience, effects, and needs of women with endometriosis-related pain in Austria. Findings reveal the negative thoughts and feelings associated with pain, as well as the predominantly negative impacts and changes in various aspects of life for affected women. Combining Western biomedicine and complementary medicine treatments, along with support from inner circles and interaction with others affected, are crucial in dealing with endometriosis and pain.