期刊
LEARNING HEALTH SYSTEMS
卷 6, 期 1, 页码 -出版社
WILEY
DOI: 10.1002/lrh2.10269
关键词
governance; learning health systems; patient engagement
资金
- Patient Centered Outcomes Research Institute Award [ME_1507_31307]
- University of Wisconsin Institute for Clinical and Translational Research
- Clinical and Translational Science Award program, the National Center for Advancing Translational Sciences [1UL1TR002373]
The study analyzed interview results from 99 patient and employee leaders in 16 systems, finding varying levels of patient engagement and ongoing progress in shared governance. Various practices such as transparency, capacity building, leadership, were identified to either support or hinder the development of an organizational culture conducive to shared governance.
Patient and family engagement has been identified as key to fulfilling Learning Healthcare Systems' (LHSs') promise as a model for improving clinical care, catalyzing research, and controlling costs. Little is known, however, about the state of patient engagement in the learning mission of these systems or about what governance structures and processes facilitate such engagement. Here, we report on an interview study of 99 patient and employee leaders in 16 systems. We found both variable levels of engagement and broad agreement that shared governance of learning remains a work in progress. We also identified a range of practices that can support or thwart development of an organizational culture conducive to shared governance, including transparency, capacity building, infrastructure investment, leadership, attention to diversity of patient partners, and committee structures. In LHSs with most sophisticated shared governance, both employees and patients contribute to building a democratic learning culture.
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