期刊
HEALTH SERVICES RESEARCH
卷 52, 期 2, 页码 599-615出版社
WILEY
DOI: 10.1111/1475-6773.12505
关键词
Patient-centered outcomes research; resource allocation; minority groups; decision making; research priorities
资金
- Patient-Centered Outcomes Research Institute (PCORI) Award [1IP2PI000521-01]
ObjectiveTo learn how minority and underserved communities would set priorities for patient-centered outcomes research (PCOR). Data SourcesSixteen groups (n=183) from minority and underserved communities in two states deliberated about PCOR priorities using the simulation exercise CHoosing All Together (CHAT). Most participants were minority, one-third reported income <$10,000, and one-fourth reported fair/poor health. DesignAcademic-community partnerships adapted CHAT for PCOR priority setting using existing research agendas and interviews with community leaders, clinicians, and key informants. Data CollectionTablet-based CHAT collected demographic information, individual priorities before and after group deliberation, and groups' priorities. Principal FindingsIndividuals and groups prioritized research on Quality of Life, Patient-Doctor, Access, Special Needs, and (by total resources spent) Compare Approaches. Those with less than a high school education were less likely to prioritize New Approaches, Patient-Doctor, Quality of Life, and Families/Caregivers. Blacks were less likely to prioritize research on Causes of Disease, New Approaches, and Compare Approaches than whites. Compare Approaches, Special Needs, Access, and Families/Caregivers were significantly more likely to be selected by individuals after compared to before deliberation. ConclusionsMembers of underserved communities, in informed deliberations, prioritized research on Quality of Life, Patient-Doctor, Special Needs, Access, and Compare Approaches.
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