期刊
JOURNAL OF PERSONALIZED MEDICINE
卷 11, 期 8, 页码 -出版社
MDPI
DOI: 10.3390/jpm11080791
关键词
personalized medicine; multiple sclerosis; lived experience; uncertainty; fatigue management
资金
- Our Health in Our Hands (OHIOH), a strategic initiative of the Australian National University
The research identifies five experiential themes of PwMS and interprets these themes based on the foundations of personalized medicine, providing a roadmap for implementing personalized medicine solutions for PwMS.
There is enormous variation in the manifestations of disease experienced by people with multiple sclerosis (PwMS). While this variation makes personalized medicine an attractive goal, there are many challenges to be overcome before this opportunity can be realized. Personalized medicine often focuses on targeted therapies and detailed monitoring, but we also need to recognize that there will be variation in acceptance of these approaches by different PwMS. In other words, deep personalization of medicine will encompass targeted therapy, precision monitoring, tailored to variation in personal attitudes to these transformations in health care. In order to meet the promise of personalized medicine for MS, understanding the experiences of PwMS is necessary both to aid in the uptake of personalized medicine, and to ensure that personalized approaches to monitoring disease and treatment provide a net benefit to PwMS rather than placing additional burdens and stressors on them. Here, we describe recent research that identified five experiential themes for PwMS, and then interpret these themes according to the foundations of personalized medicine to provide a road map for implementation of personalized medicine solutions for PwMS.
作者
我是这篇论文的作者
点击您的名字以认领此论文并将其添加到您的个人资料中。
推荐
暂无数据