期刊
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
卷 18, 期 11, 页码 -出版社
MDPI
DOI: 10.3390/ijerph18116104
关键词
report-back; health equity; community engagement; data sharing; software
资金
- Center for Research on Social Stressors in Housing Across the Life Course (CRESSH)
- NIH/NIHMD [P50 MD010428]
- US EPA [RD83615601]
- BU SPH Early Career Catalyst Award
- NIEHS T32 grant [ES014562]
Developing an open-source tool called MCR for automating compilation of health study reports has shown to save time, improve report quality, and enhance creativity among researchers.
Sharing individualized results with health study participants, a practice we and others refer to as report-back, ensures participant access to exposure and health information and may promote health equity. However, the practice of report-back and the content shared is often limited by the time-intensive process of personalizing reports. Software tools that automate creation of individualized reports have been built for specific studies, but are largely not open-source or broadly modifiable. We created an open-source and generalizable tool, called the Macro for the Compilation of Report-backs (MCR), to automate compilation of health study reports. We piloted MCR in two environmental exposure studies in Massachusetts, USA, and interviewed research team members (n = 7) about the impact of MCR on the report-back process. Researchers using MCR created more detailed reports than during manual report-back, including more individualized numerical, text, and graphical results. Using MCR, researchers saved time producing draft and final reports. Researchers also reported feeling more creative in the design process and more confident in report-back quality control. While MCR does not expedite the entire report-back process, we hope that this open-source tool reduces the barriers to personalizing health study reports, promotes more equitable access to individualized data, and advances self-determination among participants.
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