4.7 Article

Establishment of in-hospital clinical network for patients with neurofibromatosis type 1 in Nagoya University Hospital

相关参考文献

注意:仅列出部分参考文献,下载原文获取全部文献信息。
Letter Genetics & Heredity

The impact of the COVID-19 pandemic on neurofibromatosis clinical care and research

Heather B. Radtke et al.

Summary: The COVID-19 pandemic has significantly impacted NF care and research, with changes in clinician roles, decreased patient volumes, and widespread adoption of telehealth. Providers report high satisfaction with telehealth but express concerns about the inability to conduct physical examinations.

ORPHANET JOURNAL OF RARE DISEASES (2021)

Article Clinical Neurology

Neurofibromatosis Clinic: A Report on Patient Demographics and Evaluation of the Clinic

Alireza Mansouri et al.

CANADIAN JOURNAL OF NEUROLOGICAL SCIENCES (2017)

Article Genetics & Heredity

Young Australian adults with NF1 have poor access to health care, high complication rates, and limited disease knowledge

Emily C. Oates et al.

AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2013)

Article Genetics & Heredity

Emotional functioning of patients with neurofibromatosis tumor suppressor syndrome

Daphne L. Wang et al.

GENETICS IN MEDICINE (2012)

Article Biochemistry & Molecular Biology

Mortality in neurofibromatosis 1: in North West England: an assessment of actuarial survival in a region of the UK since 1989

D. Gareth R. Evans et al.

EUROPEAN JOURNAL OF HUMAN GENETICS (2011)

Article Genetics & Heredity

Mortality associated with neurofibromatosis type 1: A study based on Italian death certificates (1995-2006)

Maria Masocco et al.

ORPHANET JOURNAL OF RARE DISEASES (2011)

Article Public, Environmental & Occupational Health

The role of patient activation in frequent attendance at primary care: A population-based study of people with chronic disease

Maria Donald et al.

PATIENT EDUCATION AND COUNSELING (2011)

Review Genetics & Heredity

Clinical and genetic aspects of neurofibromatosis 1

Kimberly Jett et al.

GENETICS IN MEDICINE (2010)

Review Clinical Neurology

Neurofibromatosis type 1 and associated malignancies

Kaleb Yohay

CURRENT NEUROLOGY AND NEUROSCIENCE REPORTS (2009)

Article Public, Environmental & Occupational Health

Adolescents' transition to self-management of a chronic genetic disorder

Ellen Giarelli et al.

QUALITATIVE HEALTH RESEARCH (2008)

Review Oncology

The distinctive biology of cancer in adolescents and young adults

Archie Bleyer et al.

NATURE REVIEWS CANCER (2008)

Review Genetics & Heredity

Guidelines for the diagnosis and management of individuals with neurofibromatosis 1

Rosalie E. Ferner et al.

JOURNAL OF MEDICAL GENETICS (2007)

Article Health Care Sciences & Services

Is Patient Activation Associated With Outcomes of Care for Adults With Chronic Conditions?

David M. Mosen et al.

JOURNAL OF AMBULATORY CARE MANAGEMENT (2007)

Article Pediatrics

Retrospective analysis of patients attending a neurofibromatosis type 1 clinic

Fiona Noble et al.

JOURNAL OF PAEDIATRICS AND CHILD HEALTH (2007)

Article Genetics & Heredity

Malignant peripheral nerve sheath tumours in neurofibromatosis 1

DGR Evans et al.

JOURNAL OF MEDICAL GENETICS (2002)