Positive Aspects of Dementia Caregiving During the COVID-19 Pandemic

Objectives: This project investigated experiences of caregivers of people living with dementia during COVID-19. We recorded caregivers' perceptions of care before, during, and moving forward from COVID-19, emphasizing positive experiences, coping strategies, creative care adaptation, strengths demonstrated, and benefits of providing care. Methods: Allied health professionals conducted semi-structured interviews with 26 informal caregivers of people living with dementia. We categorized and thematically analyzed responses as before, during or moving forward from COVID-19. Results: A range of themes were derived from the data. Pre-pandemic care: (1) focusing on the person living with dementia and (2) working together. During-pandemic care: (1) respecting personhood; (2) connecting with virtues and values; (3) improving relationships; (4) seeking and receiving support; (5) prioritizing self-care; (6) being protective and proactive; (7) making practical changes. Moving forward from COVID-19: (1) strengthening commitment to the person living with dementia, (2) looking after my own needs, and (3) considering practical requirements. Conclusions: Participants reported positive caregiving experiences in all timeframes, focusing more on their own needs and experiences during and moving forward from COVID-19. This research may highlight informal caregivers' challenges and needs. Clinical implications: Enforced isolation produced deeper connections for some caregivers. Caregivers benefit from resources facilitating adaptive care.

Automated summary

This study investigated the experiences of caregivers of people living with dementia during COVID-19 and found that caregivers reported positive caregiving experiences in all timeframes, focusing more on their own needs and experiences, rather than solely on the needs of the patients.