期刊
SUPPORTIVE CARE IN CANCER
卷 29, 期 12, 页码 8027-8044出版社
SPRINGER
DOI: 10.1007/s00520-021-06390-8
关键词
Breast cancer; Lymphedema; Self-management; Healthcare professional; Qualitative study
资金
- Natural Science Foundation of Guangdong Province of China [2020A1515010373]
This study explored the experience surrounding lymphedema self-management from the perspectives of BCRL patients and healthcare professionals. Thirteen BCRL patients and nine healthcare professionals were interviewed, identifying themes such as knowledge-attitude-practice, emotional reactions, influencing factors, support needs, and professional support. The findings suggest that greater effort is needed from healthcare professionals to strengthen lymphedema self-management, including providing more educational programs and holistic support, and addressing facilitators and barriers to promote self-management. Healthcare professionals also require adequate training to meet patients’ self-management support needs.
Purpose Breast cancer-related lymphedema (BCRL) self-management plays an important role in the lymphedema therapy. However, clinical knowledge of BCRL self-management remains minimal. This study aims to explore the experience surrounding lymphedema self-management from the perspectives of BCRL patients and healthcare professionals. Methods Semi-structured interviews were implemented with BCRL patients and healthcare professionals. Audio-recordings of interviews were transcribed verbatim and thematic analysis was undertaken to analyze the interview data. Results Thirteen BCRL patients (aged 34-65 years) and nine healthcare professionals (2 physicians, 4 nurses, and 3 lymphedema therapists) were interviewed. Five themes emerged from interviews with participants: knowledge-attitude-practice surrounding lymphedema self-management, emotional reactions towards lymphedema self-management, factors influencing lymphedema self-management, support needs for lymphedema self-management, healthcare professional support of BCRL self-management. Conclusions This study showed knowledge-attitude-practice, feelings, influencing factors, roles, dilemmas, and support needs regarding BCRL self-management. Greater effort is required for healthcare professionals to strengthen the lymphedema self-management. Providing more educational program and holistic support, and strengthening the facilitators and controlling the barriers might benefit promoting lymphedema self-management. Likewise, healthcare professionals need adequate training to be able to meet patients' self-management support needs.
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