期刊
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
卷 64, 期 2, 页码 149-155出版社
WILEY
DOI: 10.1111/dmcn.14954
关键词
-
This review examines children's self-reported outcome measurements in pediatric neurology, discussing patient-reported outcomes, evaluation of intervention effects, and the importance of incorporating patients' perspectives in the evaluation process. The application of patients' views in the assessment of medical interventions has become an important expectation, aligning with current healthcare goals.
This review explores children's self-reported outcome measurements in pediatric neurology. We examine the following questions: (1) What is meant by patient-reported health, functioning, and quality of life outcomes? (2) How can patients express whether the interventions they receive do more good than harm? (3) Why and how should pediatric neurology patients help determine the outcomes of interest? (4) What tools and recommendations are available to evaluate the outcomes of interest? Applying patients' perspectives across the processes of evaluation of medical interventions has become an important expectation. These developments, consistent with current healthcare goals, coincide with the evolution of pediatric neurology into a sophisticated diagnostic-interventional field that aims to prolong survival, decrease impairments and symptoms, and improve patients' well-being - the recognized essential endpoints of interest in all medicine.
作者
我是这篇论文的作者
点击您的名字以认领此论文并将其添加到您的个人资料中。
推荐
暂无数据