期刊
PATIENT EDUCATION AND COUNSELING
卷 105, 期 1, 页码 88-104出版社
ELSEVIER IRELAND LTD
DOI: 10.1016/j.pec.2021.05.016
关键词
Health literacy; Communication; Patient education; Health promotion; Person-centered care; Chronic kidney disease; Qualitative research; Longitudinal research
资金
- Dutch Kidney Foundation [17SWO06]
- Social and Behavioural Sciences Call
The study investigated the experiences and barriers of self-management from the perspectives of patients with limited health literacy and healthcare professionals. Three routes to optimize self-management were suggested: providing earlier information, applying person-centered strategies, and improving competencies of healthcare professionals.
Objectives: Limited health literacy (LHL) is associated with faster kidney deterioration. Health care professionals (HCPs) promote self-management to maintain kidney function, which is difficult for patients with LHL. Evidence lacks on perceived barriers and best strategies to optimize their self-management. Our study aims to explore experiences with and barriers for self-management from the perspectives of LHL patients and HCPs to identify strategies to optimize self-management. Methods: We performed a longitudinal qualitative study with semi-structured in-depth interviews and focus group discussions among CKD patients and LHL (n = 24) and HCPs (n = 37) from general practices and hospitals. Results: Four themes arose among patients: (1) CKD elusiveness, (2) suboptimal intake of knowledge (3) not taking a front-seat role, and (4) maintaining change. Among HCPs, three themes emerged: (1) not recognizing HL problems, (2) lacking effective strategies, and (3) health care barriers. Conclusion: We suggest three routes to optimize self-management: providing earlier information, applying person-centered strategies to maintain changes, and improving competencies of HCPs . Practice implications: HCPs need to explain CKD self-management better to prevent kidney deterioration. New interventions, based on behavioral approaches, are needed to optimize self-management. HCPs need training to improve recognition and support of LHL patients. (c) 2021 The Author(s). Published by Elsevier B.V. CC_BY_4.0
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