4.4 Review

The full spectrum of ethical issues in dementia research: findings of a systematic qualitative review

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Summary: This study aimed to explore the perspectives and experiences of older persons and their caregivers regarding research participation with impaired decision-making capacity. The findings from a scoping review and synthesis analysis showed that older persons have a willingness to participate in research but require reduced risks and burdens, increased benefits, greater consumer input, and shared decision-making. The study highlights the importance of investigating the perspectives and experiences of research participation in a wider range of countries and conditions, as well as disseminating findings through diverse media.

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