期刊
FRONTIERS IN PUBLIC HEALTH
卷 9, 期 -, 页码 -出版社
FRONTIERS MEDIA SA
DOI: 10.3389/fpubh.2021.526286
关键词
biological specimen bank; child health; data archive; data exploration; data sharing; environmental sample bank; information dissemination; longitudinal studies
资金
- National Institutes of Health
- NICHD [HHSN275201500050U]
The National Children's Study Archive (NCSA) was established as a repository for samples, data, and information to provide qualified researchers with access for secondary research. The NCSA model offers a 3-tiered access system designed to allow users to explore and request data and samples at different levels.
The National Children's Study (NCS) Archive was created as a repository of samples, data, and information from the NCS Vanguard Study-a longitudinal pregnancy and birth cohort evaluating approaches to study influence of environmental exposures on child health and development-to provide qualified researchers with access to NCS materials for use in secondary research. The National Children's Study Archive (NCSA) model is a 3-tiered access model designed to make the wealth of information and materials gathered during the NCS Vanguard Study available at a user appropriate level. The NCSA model was developed as a 3-tier framework, for users of varying access levels, providing intuitive data exploration and visualization tools, an end-to-end data and sample request management system, and a restricted portal for participant-level data access with a team of experts available to assist users. This platform provides a model to accelerate transformation of information and materials from existing studies into new scientific discoveries.
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