期刊
JOURNAL OF FAMILY NURSING
卷 27, 期 1, 页码 55-72出版社
SAGE PUBLICATIONS INC
DOI: 10.1177/1074840720977180
关键词
self-management; family caregiver; life-limiting; chronic illness; metasynthesis; qualitative
资金
- Palliative Care Research Cooperative Group - National Institute of Nursing Research [U24NR014637]
- National Institute of Nursing Research [R00NR015903]
- National Cancer Institute [R01CA229197]
- Department of Veterans Affairs Office of Academic Affiliations through the National Clinician Scholars Program
- CTSA from the National Center for Advancing Translational Sciences (NCATS), a component of the National Institutes of Health (NIH) [TL1 TR001864]
Family caregivers play a crucial role in supporting patient self-management of chronic, life-limiting illness. Their processes include focusing on the patient's needs, activating resources for themselves, and supporting patients with such illnesses. Factors affecting their support include personal characteristics, health status, resources, environmental characteristics, and the healthcare system.
Family caregivers play an integral role in supporting patient self-management, yet how they perform this role is unclear. We conducted a qualitative metasynthesis of family caregivers' processes to support patient self-management of chronic, life-limiting illness and factors affecting their support. Methods included a systematic literature search, quality appraisal of articles, data abstraction, and data synthesis to produce novel themes. Thirty articles met inclusion criteria, representing 935 international family caregivers aged 18 to 89 years caring for patients with various health conditions. Three themes characterized family caregivers' processes to support patient self-management: Focusing on the Patient's Illness Needs, Activating Resources to Support Oneself as the Family Caregiver, and Supporting a Patient Living with a Chronic, Life-Limiting Illness. Factors affecting family caregivers' support included Personal Characteristics, Health Status, Resources, Environmental Characteristics, and the Health Care System. The family caregiver role in supporting patient self-management is multidimensional, encompassing three processes of care and influenced by multiple factors.
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