期刊
HAEMOPHILIA
卷 27, 期 3, 页码 463-469出版社
WILEY
DOI: 10.1111/hae.14221
关键词
bleeding disorder; haemophilia; heavy menstrual bleeding; post-partum haemorrhage and reproduction; von willebrand disease; women
类别
资金
- European Association for Haemophilia and Allied Disorders
Multidisciplinary management of women with bleeding disorders is crucial in addressing the challenges they face both physically and psychologically, especially in regards to menstrual cycles and pregnancy planning.
Introduction: Multidisciplinary management of women-specific bleeding is important to preserve quality of life, healthy reproduction and social participation of women and girls with bleeding disorders (WBD). Aim: To support appropriate multidisciplinary care for WBD in haemophilia treatment centres. Methods: Two case examples are presented and management issues discussed from different health care perspectives, including the nurse, patient, psychologist, gynaecologist, geneticist, psychosexual therapist and haematologist. Results: Woman with bleeding disorders may experience heavy menstruation from menarche onwards. This has a physical and psychosocial impact requiring a multidisciplinary approach. If a woman with an inherited bleeding disorder desires to become pregnant, preconception counselling is essential, to discuss genetic diagnosis, state of the art treatment options for the bleeding disorder in question and possible choices to prevent having an affected child, as well as maternal bleeding risks during conception, delivery and the post-partum period. Conclusion: Adequate management and good education of WBD requires a patient-centred multidisciplinary approach with experienced specialists in a haemophilia treatment centre.
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