Developing services for long COVID: lessons from a study of wounded healers

Persistent symptoms lasting longer than 3 weeks are thought to affect 10-2 0% of patients following SARS-CoV-2 infection. No formal guidelines exist in the UK for treating patients with long COVID and services are sporadic and variable, although additional funding is promised for their development. In this study, narrative interviews and focus groups are used to explore the lived experience of 43 healthcare professionals with long COVID. These individuals see the healthcare system from both professional and patient perspectives, thus represent an important wealth of expertise to inform service design. We present a set of co-designed quality standards, highlighting equity and ease of access, minimal patient care burden, clinical responsibility, a multidisciplinary and evidence-based approach, and patient involvement; and we apply these to propose a potential care pathway model that could be adapted and translated to improve care of patients long COVID.

Automated summary

Persistent symptoms of long COVID affect 10-20% of patients following SARS-CoV-2 infection, with no formal guidelines in the UK for treatment. A study explores the lived experience of 43 healthcare professionals with long COVID, who offer valuable expertise for service design. Quality standards, including equity, ease of access, minimal patient care burden, clinical responsibility, a multidisciplinary approach, and patient involvement, are proposed for a potential care pathway model to improve care for long COVID patients.