Interdisciplinary care of children with trisomy 13 and 18

Children with trisomy 13 and 18 (previously deemed incompatible with life) are living longer, warranting a comprehensive overview of their unique comorbidities and complex care needs. This Review Article provides a summation of the recent literature, informed by the study team's Interdisciplinary Trisomy Translational Program consisting of representatives from: cardiology, cardiothoracic surgery, neonatology, otolaryngology, intensive care, neurology, social work, chaplaincy, nursing, and palliative care. Medical interventions are discussed in the context of decisional-paradigms and whole-family considerations. The communication format, educational endeavors, and lessons learned from the study team's interdisciplinary care processes are shared with recognition of the potential for replication and implementation in other care settings.

Automated summary

Children with trisomy 13 and 18 are living longer than previously thought, leading to a need for a comprehensive understanding of their health needs and care interventions. This review article highlights the importance of interdisciplinary care teams and the value of sharing experiences in caring for these children.