期刊
PHARMACOGENOMICS
卷 21, 期 5, 页码 347-358出版社
FUTURE MEDICINE LTD
DOI: 10.2217/pgs-2019-0175
关键词
patient education; pharmacogenetics; pharmacogenomics testing; qualitative methods; think aloud
资金
- NIH [U19 GM61388, R01 GM28157, U01 HG005137, R01 GM125633, R01 AG034676, U01 HG06379]
Aim: Pharmacogenomics (PGx) holds potential to improve patient treatment; yet, effective patient educational materials are limited. Materials & methods: Using a 'think aloud' technique, we sought to understand comprehension and perceptions of a multimedia PGx results packet including a cover letter with QR code to an educational video, brochure and prototype report in the context of PGx case vignettes. Results: The cover letter and video components were viewed less favorably due to excess detail, complex jargon and technology challenges. Recommendations were to enhance comprehension and utility and to customize materials to each patient's medications or disease conditions. Conclusion: Educational materials were revised to improve comprehension and usability, and diminish concerns to better prepare patients to understand the importance of discussing test results with their provider.
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