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Philippa Moss et al.
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Ron D. Hays et al.
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Karon F. Cook et al.
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Jinkuk Hong et al.
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Alycia K. Halladay et al.
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Mary Jo Kupst et al.
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Ulrike Ravens-Sieberer et al.
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John M. Salsman et al.
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Carole A. Tucker et al.
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Michael J. Barry et al.
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R. Christopher Sheldrick et al.
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Amy M. Daniels et al.
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JOURNAL OF PEDIATRIC PSYCHOLOGY (2011)
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Hane Lee et al.
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Honghu Lie et al.
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Nan E. Rothrock et al.
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David Cella et al.
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Elizabeth A. Hahn et al.
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Debra E. Irwin et al.
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Dasha Cherepanov et al.
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Karen Kuhlthau et al.
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Research electronic data capture (REDCap)-A metadata-driven methodology and workflow process for providing translational research informatics support
Paul A. Harris et al.
JOURNAL OF BIOMEDICAL INFORMATICS (2009)
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Kathleen N. Lohr et al.
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Age and gender differences in health-related quality of life of children and adolescents in Europe: a multilevel analysis
Gisela Michel et al.
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Ron D. Hays et al.
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Psychiatric disorders in children with autism spectrum disorders: Prevalence, comorbidity, and associated factors in a population-derived sample
Emily Simonoff et al.
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Hui Liu et al.
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Li-Ching Lee et al.
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Bryce B. Reeve et al.
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C Bisegger et al.
SOZIAL-UND PRAVENTIVMEDIZIN (2005)
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SB Detmar et al.
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