4.6 Article

Development and usability testing of the e-EXCELS tool to guide cancer survivorship follow-up care

期刊

PSYCHO-ONCOLOGY
卷 29, 期 1, 页码 123-131

出版社

WILEY
DOI: 10.1002/pon.5222

关键词

breast cancer survivors; cancer survivorship; cancer; colorectal cancer survivors; eHealth; mHealth; oncology; prostate cancer survivors; self-management

资金

  1. National Cancer Institute [CA 1766838, P30 CA072720]

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Objective The aim of this study is to describe a user-centered (e.g., cancer survivors and clinicians) development process of an eHealth tool designed to facilitate self-management of cancer survivorship follow-up care. Methods Guided by Cognitive-Social Health Information Processing (C-SHIP) model and informed by core self-management skills, we engaged in a user-centered design process. In phase I, we conducted in-depth interviews with survivors of breast (n = 33), prostate (n = 4), and colorectal (n = 6) cancers, and (n = 9) primary care providers to develop content and design of the web tool. Phase II utilized iterative user testing interviews (n = 9) to test the web-based tool prototype. Data from both phases were independently coded using a template/content analytic approach. Results The top 5 functions identified in phase I for the web-based platform included: (a) educational materials to learn and prepare for health encounters (80%); (b) questions for health providers (74%); (c) ability to track contact information of providers (67%); (d) provide general information (64%); and, (e) support information (62%). Users of the prototype reported patient burden, tool fatigue, introduction timing of the tool, relevance, and security/privacy as concerns in phase II. Conclusions This study demonstrates the value of using a theoretically informed and user-centered design process to develop relevant and patient-centered eHealth resources to support cancer survivorship. A larger study is needed to establish the efficacy of this eHealth tool as an intervention to improve adherence to follow-up care guidelines.

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