期刊
BIOPRESERVATION AND BIOBANKING
卷 14, 期 3, 页码 256-259出版社
MARY ANN LIEBERT, INC
DOI: 10.1089/bio.2016.0005
关键词
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资金
- Biobank Standardisation and Harmonisation for Research Excellence in the European Union (BioSHaRE-EU) program - European Union Seventh Framework Programme [261433]
- Canadian Institutes of Health Research [EP1-120608, EP2-120609]
- Genome Quebec
- Genome Canada
- Government of Canada
- Ministere de l'Economie, Innovation et Exportation du Quebec (Can-SHARE grant)
- Canada Research Chair in Law and Medicine
The Global Alliance for Genomics and Health is marshaling expertise in biomedical research and data sharing policy to propel bench-to-bedside translation of genomics in parallel with many of the BioSHaRE-EU initiatives described at length in this Issue. Worldwide representation of institutions, funders, researchers, and patient advocacy groups at the Global Alliance is testament to a shared ideal that sees maximizing the public good as a chief priority of genomic innovation in health. The Global Alliance has made a critical stride in this regard with the development of its Framework for Responsible Sharing of Genomic and Health-related Data.(1) This article first discusses the human rights pillars that underlie the Framework and mission of the Global Alliance. Second, it outlines the Global Alliance's use of data governance policies through a number of demonstration projects. Finally, the authors describe how the Global Alliance envisions international data sharing moving forward in the postgenomic era.
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