期刊
JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY
卷 8, 期 5, 页码 587-592出版社
MARY ANN LIEBERT, INC
DOI: 10.1089/jayao.2019.0015
关键词
health personnel; interpretive phenomenological analysis; qualitative; terminal care; delivery of health care
类别
资金
- Beatrice Hunter Cancer Research Institute
- Vanier Canada Graduate Scholarship
- Nova Scotia Research and Innovation Graduate Scholarship
- Department of Surgery, Faculty of Health, and Faculty of Graduate Studies at Dalhousie University
- Terry Fox Research Institute
- GIVETOLIVE Donald Francis MacDougall PhD award
Purpose: Adolescents and young adults (AYAs) with terminal cancer are a marginalized population with unique medical and psychosocial needs. AYAs commonly report challenges with their health care experiences, however, little is known about the experiences of the health care providers (HCPs) who deliver this specialized care. The purpose of the current study was to understand HCPs' experiences caring for AYAs with terminal cancer. Methods: Nine HCPs (four nurses and five physicians) took part in in-depth semistructured interviews. Participants were eligible if they were a nurse or physician in Atlantic Canada; cared for at least one AYA patient with terminal cancer in the past 3 years; and were able to speak and understand English. Data were analyzed using interpretive phenomenological analysis. Results: Analyses revealed four superordinate themes present in the data: (1) many unknowns and uncertainties associated with providing care for AYAs compounded by minimal or no training specifically concerning this population; (2) an intense emotional experience compared with caring for patients with terminal cancer of other ages; (3) personal identification with patients and their families; and (4) attempts to make sense of the circumstance thwarted by feelings of injustice and unfairness. Conclusions: HCPs experienced unique emotional and logistical challenges when caring for AYAs with terminal cancer, which can influence the care they provide. HCPs' experiences highlight the need for training to support clinicians in caring for AYAs with terminal cancer to optimize their own well-being and delivery of health care services to this population.
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