期刊
JOURNAL OF LAW MEDICINE & ETHICS
卷 47, 期 1, 页码 97-105出版社
SAGE PUBLICATIONS INC
DOI: 10.1177/1073110519840488
关键词
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资金
- Precision Medicine Policy Network
- PACEOMICS via Genome Canada
- PACEOMICS via Genome Alberta
- PACEOMICS via Genome Quebec
- Institute of Health Economics (Alberta, Canada)
- Alberta Innovates (Government of Alberta)
- University of Alberta
We explore how principles predicting the success of a medical information commons (MIC) advantaged or disadvantaged three MIC initiatives in three Canadian provinces. Our MIC case examples demonstrate that practices and policies to promote access to and use of health information can help improve individual healthcare and inform a learning health system. MICs were constrained by heterogenous health information protection laws across jurisdictions and risk-averse institutional cultures. A networked approach to MICs would unlock even more potential for national and international data collaborations to improve health and healthcare.
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