期刊
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS
卷 14, 期 2, 页码 169-181出版社
SAGE PUBLICATIONS INC
DOI: 10.1177/1556264619833858
关键词
priority-setting; health research; disadvantage; inclusion; equity; research ethics; engagement
资金
- Australian Research Council (ARC) Discovery Early Career Researcher Award [DE170100414]
Community engagement is gaining prominence in global health research. But community members, especially those from groups and communities that are considered disadvantaged and marginalized, rarely have a say in the agendas and priorities of the research projects that aim to help them. This article explores how to achieve their inclusion in priority-setting for global health research projects. A total of 29 in-depth interviews and one focus group were undertaken with researchers, research ethicists, community engagement practitioners, and community-based organization staff. Thematic analysis identified two core dimensions of inclusion-representation and voice-and what is necessary to realize them with marginalized groups and communities in global health research priority-setting. A set of ethical considerations is proposed to assist researchers and their partners design more inclusive priority-setting processes.
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