期刊
PATIENT EDUCATION AND COUNSELING
卷 102, 期 6, 页码 1187-1193出版社
ELSEVIER IRELAND LTD
DOI: 10.1016/j.pec.2019.01.009
关键词
Patient needs; Cancer information-seeking preferences; Information avoidance; Personalized cancer care; Person-centered care; Patients as partners; Satisfaction with cancer care
资金
- Rossy Cancer Network
- Christine and Herschel Victor/Hope & Cope Research Chair in Psychosocial Oncology based at McGill University
Objective: True person-centered care (PCC) involves anticipating, responding to, and integrating patients' needs and preferences as the illness experience unfolds. PCC success rests, in part, on quality provider-patient communication and tailored information exchange. These processes can have profound effects on the patient experience, self-management and health outcomes including survival. Cancer information-seeking preferences (CISP) by patients are increasingly found to modulate illness and care processes. However, research has yet to document the CISP types and prevalence as well as their associations with satisfaction with care. Method: Individuals (N=2142) treated for cancer in the last 6 months completed the Ambulatory Oncology Patient Satisfaction Survey (AOPSS) and a CISP measure. Results: Whereas 60.3% (n = 1292) reported wanting to actively seek information about their cancer, a surprisingly high percentage (i.e., 39.7%; n = 850) did not. Men reported avoiding cancer information to a greater extent than women, chi(2) (4, N= 2108) = 12.00, p = 0.02. CISP were also differentially associated with 6 key domains of satisfaction, with intense seekers consistently being less satisfied. Conclusion and practice implications: These findings underscore how CISP can significantly affect patients' cancer experience as well as their care satisfaction. (C) 2019 Elsevier B.V. All rights reserved.
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