期刊
TRENDS IN GENETICS
卷 29, 期 6, 页码 375-382出版社
ELSEVIER SCIENCE LONDON
DOI: 10.1016/j.tig.2013.02.001
关键词
ethics; informed consent; privacy; identifiability; data sharing; return of results
资金
- Intramural NIH HHS [Z99 HG999999] Funding Source: Medline
The ethical landscape in the field of genomics is rapidly shifting. Plummeting sequencing costs, along with ongoing advances in bioinformatics, now make it possible to generate an enormous volume of genomic data about vast numbers of people. The informational richness, complexity, and frequently uncertain meaning of these data, coupled with evolving norms surrounding the sharing of data and samples and persistent privacy concerns, have generated a range of approaches to the ethical management of genomic information. As calls increase for the expanded use of broad or even open consent, and as controversy grows about how best to handle incidental genomic findings, these approaches, informed by normative analysis and empirical data, will continue to evolve alongside the science.
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