期刊
STEM CELL REVIEWS AND REPORTS
卷 10, 期 2, 页码 145-150出版社
SPRINGER
DOI: 10.1007/s12015-014-9497-0
关键词
Induced pluripotent stemcells; Human embryonic stem cells; Autism spectrum disorder; Biobanks; Ethics; Informed consent; Patient autonomy
资金
- Stanford Center for Biomedical Ethics
- NIH [P50 HG003389]
- Stanford Institute for Stem Cell Biology and Regenerative Medicine
New applications of iPSC technology to research on complex idiopathic conditions raise several important ethical and social considerations for potential research participants and their families. In this short review, we examine these issues through the lens of emerging research on autism spectrum disorder (ASD). We begin by describing the current state of iPSC technology in research on ASD. Then we discuss how the social history of and current controversies in autism research combined with the emergence of autism-specific iPSC biobanks indicate an urgent need for researchers to clearly communicate the limitations and possibilities of iPSC research to ensure research participants have the ability to provide fully informed, voluntary consent. We conclude by offering recommendations to bolster informed consent for research involving iPSC biobanks, both in the specific context of ASD and more broadly.
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