期刊
SEIZURE-EUROPEAN JOURNAL OF EPILEPSY
卷 19, 期 1, 页码 23-30出版社
W B SAUNDERS CO LTD
DOI: 10.1016/j.seizure.2009.10.007
关键词
LGS; Lennox-Gastaut Syndrome; Conceptual model; Caregiver; HRQL; Quality of life
资金
- Eisai Europe Ltd.
LGS is a severe form of childhood epilepsy which is characterized by multiple seizures and cognitive impairment. Semi-structured interviews were conducted with 40 parents of children with LGS in the US, UK, and Italy. Parents were asked to report on their perceptions of the HRQL of their child and also to describe the impact on their own HRQL. Thematic analysis was conducted to develop themes relating to the impact on HRQL. The themes were organized into conceptual models of the impact of LGS on the HRQL of the parent and the child. The models demonstrate the complex relationships between the components of LGS and their impact on HRQL.. (C) 2009 British Epilepsy Association. Published by Elsevier Ltd. All rights reserved.
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