期刊
QUALITY OF LIFE RESEARCH
卷 20, 期 2, 页码 205-214出版社
SPRINGER
DOI: 10.1007/s11136-010-9731-4
关键词
Health-related quality of life; Pediatrics; Congenital heart disease; Acquired heart disease; External validity
类别
资金
- National Institute of Child Health and Human Development, Rockville, MD [5-K23-HD048637]
- American Heart Association - Pennsylvania/Delaware Affiliate, Columbus, OH [0465467U]
- Cincinnati Children's Hospital Research Foundation, Cincinnati, OH
- The Children's Hospital of Philadelphia, Philadelphia, PA
The Pediatric Cardiac Quality of Life Inventory (PCQLI) is a disease-specific, health-related quality of life (HRQOL) measure for pediatric heart disease (HD). The purpose of this study was to demonstrate the external validity of PCQLI scores. The PCQLI development site (Development sample) and six geographically diverse centers in the United States (Composite sample) recruited pediatric patients with acquired or congenital HD. Item response option variability, scores [Total (TS); Disease Impact (DI) and Psychosocial Impact (PI) subscales], patterns of correlation, and internal consistency were compared between samples. A total of 3,128 patients and parent participants (1,113 Development; 2,015 Composite) were analyzed. Response option variability patterns of all items in both samples were acceptable. Inter-sample score comparisons revealed no differences. Median item-total (Development, 0.57; Composite, 0.59) and item-subscale (Development, DI 0.58, PI 0.59; Composite, DI 0.58, PI 0.56) correlations were moderate. Subscale-subscale (0.79 for both samples) and subscale-total (Development, DI 0.95, PI 0.95; Composite, DI 0.95, PI 0.94) correlations and internal consistency (Development, TS 0.93, DI 0.90, PI 0.84; Composite, TS 0.93, DI 0.89, PI 0.85) were high in both samples. PCQLI scores are externally valid across the US pediatric HD population and may be used for multi-center HRQOL studies.
作者
我是这篇论文的作者
点击您的名字以认领此论文并将其添加到您的个人资料中。
推荐
暂无数据