期刊
QUALITY OF LIFE RESEARCH
卷 17, 期 5, 页码 737-749出版社
SPRINGER
DOI: 10.1007/s11136-008-9352-3
关键词
epidemiologic measurements; focus groups; outcome assessment (health care); qualitative research; quality of life
类别
资金
- AHRQ HHS [T32 HS000032, T32 HS000032-17] Funding Source: Medline
- NIAMS NIH HHS [U01 AR052181-03, U01 AR052171, U01 AR052186, U01AR52186, U01 AR052181-02, U01AR52155, U01 AR052155, U01AR52158, U01AR52170, U01 AR052170, U01 AR052181, U01AR52171, U01 AR052158, U01 AR052181-04, U01 AR052177, U01AR52181, U01 AR052181-05] Funding Source: Medline
Purpose Our aim was to assess the content validity of the Patient-Reported Outcomes Measurement Information System (PROMIS) social health item banks by comparing a prespecified conceptual model with concepts that focus-group participants identified as important social-health-related outcomes. These data will inform the process of improving health-related quality-of-life measures. Methods Twenty-five patients with a range of social limitations due to chronic health conditions were recruited at two sites; four focus groups were conducted. Raters independently classified participants' statements using a hierarchical, nested schema that included health-related outcomes, role performance, role satisfaction, family/friends, work, and leisure. Results Key themes that emerged were fulfilling both family and work responsibilities and the distinction between activities done out of responsibility versus enjoyment. Although focus-group participants identified volunteerism and pet ownership as important social-health-related concepts, these were not in our original conceptual model. The concept of satisfaction was often found to overlap with the concept of performance. Conclusions Our conceptual model appears comprehensive but is being further refined to more appropriately (a) distinguish between responsibilities versus discretionary activities, and (b) situate the outcome of satisfaction as it relates to impairment in social and other domains of health.
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