期刊
PUBLIC HEALTH GENOMICS
卷 13, 期 5, 页码 276-283出版社
KARGER
DOI: 10.1159/000242199
关键词
African Americans; Focus groups; Genetic testing; Personalized medicine; Race-based prescribing
资金
- National Center of Research Resources, National Institutes of Health [M01RR00046, UL1RR025747]
- Agency for Health Care Research and Quality
- University of North Carolina at Chapel Hill [T32-HS-0003220]
- AGENCY FOR HEALTHCARE RESEARCH AND QUALITY [T32HS000032] Funding Source: NIH RePORTER
- NATIONAL CENTER FOR RESEARCH RESOURCES [UL1RR025747, M01RR000046] Funding Source: NIH RePORTER
Aims: Although recent advances in pharmacogenomics are making possible the use of genetic testing to determine the best medication for patients, little is known about how patients view such procedures. The aims for this study that were developed collaboratively as part of a community-academic partnership are: (1) What are the attitudes and perceptions of prescription drug consumers concerning personalized medicine and genetic testing for drug compatibility and how do they differ between African American and white patients? (2) What are the attitudes and perceptions of patients concerning race-based prescribing and how do they differ between African American and white patients? Methods: We conducted 6 focus groups, 2 with white participants and 4 with African American participants. Focus groups were audio-recorded, transcribed, and analyzed to ascertain common themes. Results: Our results suggest that personalized medicine and genetic testing, though not well understood by lay persons, were considered positive advances in medicine. However, participants also voiced concerns about these advances that differed by race. Conclusion: This study points to the need to include perspectives of at-risk communities as we move toward wider use of this technology. Copyright (C) 2009 S. Karger AG, Basel
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