期刊
NATURE REVIEWS GENETICS
卷 9, 期 5, 页码 406-411出版社
NATURE PUBLISHING GROUP
DOI: 10.1038/nrg2360
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Recent advances in high-throughput genomic technologies are showing concrete results in the form of an increasing number of genome-wide association studies and in the publication of comprehensive individual genome-phenome data sets. As a consequence of this flood of information the established concepts of research ethics are stretched to their limits, and issues of privacy, confidentiality and consent for research are being re-examined. Here, we show the feasibility of the co-development of scientific innovation and ethics, using the open-consent framework that was implemented in the Personal Genome Project as an example.
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