期刊
JOURNAL OF RHEUMATOLOGY
卷 37, 期 9, 页码 1944-1952出版社
J RHEUMATOL PUBL CO
DOI: 10.3899/jrheum.091327
关键词
JUVENILE IDIOPATHIC ARTHRITIS; INTERNET; RANDOMIZED CONTROLLED TRIAL; SELF-MANAGEMENT; ADOLESCENT
类别
资金
- Canadian Arthritis Network
- Arthritis Society
- Canadian Institutes of Health Research
- Canadian Child Health Clinician Scientist Program Career Enhancement Award
Objective. To determine the feasibility of a 12-week Internet-based self-management program of disease-specific information, self-management strategies, and social support with telephone support for youth with juvenile idiopathic arthritis (JIA) and their parents, aimed at reducing physical and emotional symptoms and improving health-related quality of life (HRQOL). Methods. A nonblind pilot randomized controlled trial (NCT01011179) was conducted to test the feasibility of the Teens Taking Charge: Managing Arthritis Online Internet intervention across 4 tertiary-level centers in Canada. Participants were 46 adolescents with HA, ages 12 to 18 years, and 1 parent for each participant, who were randomized to the control arm (n = 24) or the Internet intervention (n = 22). Results. The 2 groups were comparable on demographic and disease-related variables and treatment expectation at baseline. Attrition rates were 18.1% and 20.8%, respectively, from experimental and control groups. Ninety-one percent of participants randomized to the experimental group completed all 12 online modules and weekly phone calls with a coach in an average of 14.7 weeks (SD 2.1). The control group completed 90% of weekly attention-control phone calls. The Internet treatment was rated as acceptable by all youth and their parents. In posttreatment the experimental group had significantly higher knowledge (p<0.001, effect size 1.32) and lower average weekly pain intensity (p = 0.03, effect size 0.78). There were no significant group differences in HRQOL, self-efficacy, adherence, and stress posttreatment. Conclusion. Findings support the feasibility (acceptability, compliance, and user satisfaction) and initial efficacy of Internet delivery of a self-management program for improving disease-specific knowledge and reducing pain in youth with JIA. (First Release July 1 2010; J Rheumatol 2010; 37:1944-52; doi:10.3899/jrheum.091327)
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