期刊
JOURNAL OF GENETIC COUNSELING
卷 22, 期 6, 页码 771-783出版社
SPRINGER
DOI: 10.1007/s10897-013-9612-4
关键词
Oncogenetics; Familial cancer counseling; Portuguese cancer genetics services; Professionals' views; Services provision; Qualitative study
资金
- Portuguese Science and Technology Foundation (FCT)
- University of Aveiro [SFRH/BD/38773/2007]
- CGPP-IBMC [SFRH/BPD/66484/2009]
- Fundação para a Ciência e a Tecnologia [SFRH/BD/38773/2007] Funding Source: FCT
Although available guidelines for familial cancer risk counseling clearly state the need to provide adequate psychosocial assessments and support, this feature of care is only available in part for individuals and families in oncogenetic counseling protocols in Portugal. The purpose of this study was to examine the psychosocial aspects of oncogenetic counseling provided by a sample of Portuguese genetics professionals. We sought to ascertain perceived need for the provision of psychosocial services and ways to enhance the psychosocial focus in service delivery. A qualitative study was designed; semi-structured focus groups and individual interviews were performed with 30 professionals from Portuguese healthcare institutions where oncogenetic counseling is offered. Findings suggest: current practice is aligned with the teaching model, with a mainly information-based focus; use of psychosocial counseling techniques and psychosocial support is limited throughout the genetic counseling timeline; there is a limited workforce of adequately trained psychosocial professionals, who are disadvantaged by structural and organizational constraints. These factors are considered to be serious barriers for psychosocial delivery. Development of multidisciplinary teams working in oncogenetics, and need for further counselling skills and training for genetics healthcare professionals were identified as priorities. Implications for practice and policy are discussed. Portuguese genetic counselors who have recently completed their training, may therefore contribute to enhanced psychosocial services delivery.
作者
我是这篇论文的作者
点击您的名字以认领此论文并将其添加到您的个人资料中。
推荐
暂无数据