期刊
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS
卷 9, 期 4, 页码 10-21出版社
SAGE PUBLICATIONS INC
DOI: 10.1177/1556264614544454
关键词
biomedical research; Latino; ethnicity; recruitment; qualitative; community perceptions; therapeutic misconception
资金
- National Cancer Institute [U54 CA132381, R25 CA92408]
Latinos are under-represented in biomedical research conducted in the United States, impeding disease prevention and treatment efforts for this growing demographic group. We gathered perceptions of biomedical research and gauged willingness to participate through elicitation interviews and focus groups with Latinos living on the U.S.-Mexico border. Themes that emerged included a strong willingness to participate in biomedical studies and suggested that Latinos may be under-represented due to limited formal education and access to health information, not distrust. The conflation of research and clinical care was common and motivated participation. Outreach efforts and educational interventions to inform Latinos of participation opportunities and clarify harms and benefits associated with biomedical research participation will be essential to maintain trust within Latino communities.
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