4.1 Article

PARENT PERSPECTIVES ON PEDIATRIC GENETIC RESEARCH AND IMPLICATIONS FOR GENOTYPE-DRIVEN RESEARCH RECRUITMENT

相关参考文献

注意:仅列出部分参考文献,下载原文获取全部文献信息。
Article Ethics

EPILEPSY PATIENT-PARTICIPANTS AND GENETIC RESEARCH RESULTS AS ANSWERS

Emily E. Namey et al.

JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2011)

Article Ethics

RESEARCH PARTICIPANTS' PERSPECTIVES ON GENOTYPE-DRIVEN RESEARCH RECRUITMENT

Laura M. Beskow et al.

JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2011)

Article Ethics

THE MEANING OF GENETIC RESEARCH RESULTS: REFLECTIONS FROM INDIVIDUALS WITH AND WITHOUT A KNOWN GENETIC DISORDER

R. Jean Cadigan et al.

JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2011)

Article Pharmacology & Pharmacy

Biobanking in pediatrics: the human nonsubjects approach

Kyle Bertram Brothers

PERSONALIZED MEDICINE (2011)

Article Biochemistry & Molecular Biology

What is a meaningful result? Disclosing the results of genomic research in autism to research participants

Fiona Alice Miller et al.

EUROPEAN JOURNAL OF HUMAN GENETICS (2010)

Editorial Material Biochemistry & Molecular Biology

Ethical challenges in genotype-driven research recruitment

Laura M. Beskow et al.

GENOME RESEARCH (2010)

Review Genetics & Heredity

Genetic Research on Stored Tissue Samples From Minors: A Systematic Review of the Ethical Literature

Kristien Hens et al.

AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2009)

Review Biochemistry & Molecular Biology

Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers

Kristien Hens et al.

EUROPEAN JOURNAL OF HUMAN GENETICS (2009)

Letter Multidisciplinary Sciences

Biobanks: Oversight Offers Protection

Kristien Hens et al.

SCIENCE (2009)

Editorial Material Multidisciplinary Sciences

Children and Population Biobanks

David Gurwitz et al.

SCIENCE (2009)

Article Genetics & Heredity

Ethical implications of including children in a large biobank for genetic-epidemiologic research: A qualitative study of public opinion

David Kaufman et al.

AMERICAN JOURNAL OF MEDICAL GENETICS PART C-SEMINARS IN MEDICAL GENETICS (2008)

Editorial Material Biochemistry & Molecular Biology

Don't throw the baby out with the bathwater: Enabling a bottom-up approach in genome-wide association studies

Sean E. McGuire et al.

GENOME RESEARCH (2008)

Editorial Material Ethics

The challenge of incidental findings - Introduction

Susan M. Wolf

JOURNAL OF LAW MEDICINE & ETHICS (2008)

Article Ethics

Disclosing individual genetic results to research participants

Vardit Ravitsky et al.

AMERICAN JOURNAL OF BIOETHICS (2006)

Article Pediatrics

Ethical issues arising from the participation of children in genetic research

Wylie Burke et al.

JOURNAL OF PEDIATRICS (2006)

Article Public, Environmental & Occupational Health

Three approaches to qualitative content analysis

HF Hsieh et al.

QUALITATIVE HEALTH RESEARCH (2005)

Review Genetics & Heredity

Ethical issues in identifying and recruiting participants for familial genetic research

LM Beskow et al.

AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2004)