期刊
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS
卷 4, 期 4, 页码 3-16出版社
UNIV CALIFORNIA PRESS
DOI: 10.1525/jer.2009.4.4.3
关键词
deliberative democracy; public opinion; surveys; bioethical issues; dementia; surrogate consent
资金
- National Institute on Aging [R01-AG029550]
IN A LIBERAL DEMOCRACY, POLICY DECISIONS regarding ethical controversies, including those in research ethics, should incorporate the opinions of its citizens. Eliciting informed and well-considered ethical opinions can be challenging. The issues may not be widely familiar and they may involve complex scientific, legal, historical, and ethical dimensions. Traditional surveys risk eliciting superficial and uninformed opinions that may be of dubious quality for policy formation. We argue that the theory and practice of deliberative democracy (DD) is especially useful in overcoming such inadequacies. We explain DD theory and practice, discuss the rationale for using DD methods in research ethics, and illustrate in depth the use of a DD method for a long-standing research ethics controversy involving research based on surrogate consent. The potential pitfalls of DD and the means of minimizing them as well as future research directions are also discussed.
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