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Committee report: Method for evaluating conditions nominated for population-based screening of newborns and children
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HASTINGS CENTER REPORT (2008)
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O. A. Bodamer et al.
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Julia Abelson et al.
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J Koopmans et al.
PEDIATRICS (2006)
Making policy when the evidence is in dispute
D Atkins et al.
HEALTH AFFAIRS (2005)
Enthusiasm for cancer screening in the United States
LM Schwartz et al.
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION (2004)
A purposeful approach to the constant comparative method in the analysis of qualitative interviews
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Limitations of direct-to-consumer advertising for clinical genetic testing
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Cancer screening
BS Kramer et al.
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