Related references
Note: Only part of the references are listed.Intersection of biobanking and clinical care: should discrepant diagnoses and pathological findings be returned to research participants?
Nicole C. Lockhart et al.
GENETICS IN MEDICINE (2012)
An empirical examination of the management of return of individual research results and incidental findings in genomic biobanks
Gina Johnson et al.
GENETICS IN MEDICINE (2012)
International normative perspectives on the return of individual research results and incidental findings in genomic biobanks
Ma'n H. Zawati et al.
GENETICS IN MEDICINE (2012)
Exploring concordance and discordance for return of incidental findings from clinical sequencing
Robert C. Green et al.
GENETICS IN MEDICINE (2012)
Managing incidental findings and research results in genomic research involving biobanks and archived data sets
Susan M. Wolf et al.
GENETICS IN MEDICINE (2012)
Paediatric biobanks: What makes them so unique?
Julie Samuel et al.
JOURNAL OF PAEDIATRICS AND CHILD HEALTH (2012)
Rapid Whole-Genome Sequencing for Genetic Disease Diagnosis in Neonatal Intensive Care Units
Carol Jean Saunders et al.
SCIENCE TRANSLATIONAL MEDICINE (2012)
Genomics really gets personal: How exome and whole genome sequencing challenge the ethical framework of human genetics research
Holly K. Tabor et al.
AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2011)
Deploying whole genome sequencing in clinical practice and public health: Meeting the challenge one bin at a time
Jonathan S. Berg et al.
GENETICS IN MEDICINE (2011)
Ethical and practical challenges of sharing data from genome-wide association studies: The eMERGE Consortium experience
Amy L. McGuire et al.
GENOME RESEARCH (2011)
Familial Communication of Research Results: A Need to Know?
Lee Black et al.
JOURNAL OF LAW MEDICINE & ETHICS (2011)
Charting a course for genomic medicine from base pairs to bedside
Eric D. Green et al.
NATURE (2011)
Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants Updated Guidelines From a National Heart, Lung, and Blood Institute Working Group
Richard R. Fabsitz et al.
CIRCULATION-CARDIOVASCULAR GENETICS (2010)
RESEARCHER PERSPECTIVES ON DISCLOSURE OF INCIDENTAL FINDINGS IN GENETIC RESEARCH
Meredith C. Meacham et al.
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2010)
VIEWPOINT Personalized genomic information: preparing for the future of genetic medicine
Alan E. Guttmacher et al.
NATURE REVIEWS GENETICS (2010)
Genomic Medicine: Genomic Medicine -- An Updated Primer.
W. Gregory Feero et al.
NEW ENGLAND JOURNAL OF MEDICINE (2010)
Offering Individual Genetic Research Results: Context Matters
Laura M. Beskow et al.
SCIENCE TRANSLATIONAL MEDICINE (2010)
Researchers' preferences and attitudes on ethical aspects of genomics research: a comparative study between the USA and Spain
M. Ruiz-Canela et al.
JOURNAL OF MEDICAL ETHICS (2009)
IRB CHAIRS' PERSPECTIVES ON GENOMICS RESEARCH INVOLVING STORED BIOLOGICAL MATERIALS: ETHICAL CONCERNS AND PROPOSED SOLUTIONS
Leslie E. Wolf et al.
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2008)
Managing incidental findings in human subjects research: Analysis and recommendations
Susan M. Wolf et al.
JOURNAL OF LAW MEDICINE & ETHICS (2008)
Science and Society - Research ethics and the challenge of whole-genome sequencing
Amy L. McGuire et al.
NATURE REVIEWS GENETICS (2008)
Research ethics recommendations for whole-genome research: Consensus statement
Timothy Caulfield et al.
PLOS BIOLOGY (2008)
Communicating the results of clinical research to participants: Attitudes, practices, and future directions
David I. Shalowitz et al.
PLOS MEDICINE (2008)
Ethical issues arising from the participation of children in genetic research
Wylie Burke et al.
JOURNAL OF PEDIATRICS (2006)
Providing research results to study participants: support versus practice of researchers presenting at the American Society of Hematology annual meeting
H Rigby et al.
BLOOD (2005)
Do patients participating in clinical trials want to know study results?
AH Partridge et al.
JOURNAL OF THE NATIONAL CANCER INSTITUTE (2003)
Share Paper
