Journal
EUROPEAN JOURNAL OF HUMAN GENETICS
Volume 17, Issue 6, Pages 711-719Publisher
NATURE PUBLISHING GROUP
DOI: 10.1038/ejhg.2009.25
Keywords
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Funding
- Eurogentest Network of Excellence of the EU [FP6-512148]
- Medical Research Council [MC_U127527199] Funding Source: researchfish
- MRC [MC_U127527199] Funding Source: UKRI
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Although various guidelines and position papers have discussed, in the past, the ethical aspects of genetic testing in asymptomatic minors, the European Society of Human Genetics had not earlier endorsed any set of guidelines exclusively focused on this issue. This paper has served as a background document in preparation of the development of the policy recommendations of the Public and Professional Committee of the European Society of Human Genetics. This background paper first discusses some general considerations with regard to the provision of genetic tests to minors. It discusses the concept of best interests, participation of minors in health-care decisions, parents' responsibilities to share genetic information, the role of clinical genetics and the health-care system in communication within the family. Second, it discusses, respectively, the presymptomatic and predictive genetic testing for adult-onset disorders, childhood-onset disorders and carrier testing. European Journal of Human Genetics (2009) 17, 711-719; doi: 10.1038/ejhg. 2009.25; published online 11 March 2009
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