Journal
EUROPEAN JOURNAL OF CARDIO-THORACIC SURGERY
Volume 44, Issue 4, Pages 605-614Publisher
OXFORD UNIV PRESS INC
DOI: 10.1093/ejcts/ezt018
Keywords
Registries; Databases; Ethics; Management; Research
Funding
- Heart Research UK [RG2583]
- National Adult Cardiac Surgery Audit
- Healthcare Quality Improvement Partnership (HQIP)
- ESRC [ES/F029721/1, ES/J010014/1] Funding Source: UKRI
- MRC [MR/K006665/1] Funding Source: UKRI
- Economic and Social Research Council [ES/F029721/1, ES/J010014/1] Funding Source: researchfish
- Medical Research Council [MC_PC_13042, MR/K006665/1] Funding Source: researchfish
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Clinical registries will have an increasingly important role to play in health-care, with a number already established in cardiac surgery. This review covers the fundamentals of establishing and managing clinical registries, including legal and ethical frameworks along with intellectual property attribution. Also discussed are important issues relating to the processing of data, data extraction and conducting analyses using registry data.
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