Journal
EPILEPSY & BEHAVIOR
Volume 29, Issue 1, Pages 133-140Publisher
ACADEMIC PRESS INC ELSEVIER SCIENCE
DOI: 10.1016/j.yebeh.2013.07.002
Keywords
Epilepsy; Self-management; e-Health; Internet; Technology; e-Health tools; Quality of life; Meaningful access
Categories
Funding
- Centers for Disease Control and Prevention (CDC) [U48 DP001909, 1U48DP001949, 1U58DP003832-02]
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The Managing Epilepsy Well (MEW) Network was established in 2007 by the Centers for Disease Control and Prevention Epilepsy Program to expand epilepsy self-management research. The network has employed collaborative research strategies to develop, test, and disseminate evidence-based, community-based, and e-Health interventions (e-Tools) for epilepsy self-management for people with epilepsy, caregivers, and health-care providers. Since its inception, MEW Network collaborators have conducted formative studies (n = 7) investigating the potential of e-Health to support epilepsy self-management and intervention studies evaluating e-Tools (n = 5). The MEW e-Tools (the MEW website, WebEase, UPLIFT, MINDSET, and PEARLS online training) and affiliated e-Tools (Texting 4 Control) are designed to complement self-management practices in each phase of the epilepsy care continuum. These tools exemplify a concerted research agenda, shared methodological principles and models for epilepsy self-management, and a communal knowledge base for implementing e-Health to improve quality of life for people with epilepsy. (C) 2013 Elsevier Inc. All rights reserved.
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