Journal
JOURNAL OF MEDICAL ETHICS
Volume 42, Issue 4, Pages 216-219Publisher
BMJ PUBLISHING GROUP
DOI: 10.1136/medethics-2015-102663
Keywords
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Funding
- Abbvie
- Accorda
- AstraZeneca
- Avanir
- Biogen
- Boehringer Ingelheim
- Genzyme
- Janssen
- Johnson Johnson
- Merck
- Novartis
- Sanofi
- UCB
- Kaiser Permanente
- Robert Wood Johnson Foundation
- Sage Bionetworks
- AKU Society
- University of Maryland
- University of Michigan
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In recent years, there have been prominent calls for a new social contract that accords a more central role to citizens in health research. Typically, this has been understood as citizens and patients having a greater voice and role within the standard research enterprise. Beyond this, however, it is important that the renegotiated contract specifically addresses the oversight of a new, path-breaking approach to health research: participant-led research. In light of the momentum behind participant-led research and its potential to advance health knowledge by challenging and complementing traditional research, it is vital for all stakeholders to work together in securing the conditions that will enable it to flourish.
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