Journal
JOURNAL OF HUMAN BEHAVIOR IN THE SOCIAL ENVIRONMENT
Volume 15, Issue 2-3, Pages 233-249Publisher
ROUTLEDGE JOURNALS, TAYLOR & FRANCIS LTD
DOI: 10.1300/J137v15n02_14
Keywords
Caregiving; dementia; ethnicity; stigma; spirituality; focus groups
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Funding
- State of California, Department of Health Services [013608-001]
- NIH [P50 AG16570]
- UCLA/DREW Project EXPORT
- National Institutes of Health, National Center on Minority Health & Health Disparities [P20-MD00148-01]
- UCLA Center for Health Improvement in Minority Elders/Resource Centers for Minority Aging Research, National Institutes of Health, National Institute of Aging [AG-02-004]
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The proportion of minority elders with dementia in the United States is projected to rise substantially. This study elicited perceptions of the caregiving experience from informal caregivers of persons with dementia, across different ethnicities. Six focus groups with 47 dementia caregivers of African-American, Chinese-American, EuroAmerican, and Hispanic-American ethnicities were conducted. Caregiving roles, concern about the person with dementia, and unmet information and resource needs were expressed similarly. However, perspectives differed across ethnic groups on stigma surrounding dementia, benefits of caregiving, spirituality/religion to ease caregiving burden, and language barriers and discrimination. Findings suggest that interventions to reduce disparities in dementia care quality need to address ethnic variations in caregiving experiences. (C) 2007 by The Haworth Press, Inc. All rights reserved.
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