Journal
JOURNAL OF DIABETES AND ITS COMPLICATIONS
Volume 29, Issue 4, Pages 572-577Publisher
ELSEVIER SCIENCE INC
DOI: 10.1016/j.jdiacomp.2015.01.012
Keywords
Diabetes distress; Type 1 diabetes; Distress profile; Assessing distress; Types of distress
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Funding
- NIH [DK094863]
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Aims: To identify the unique sources of diabetes distress (DD) for adults with type 1 diabetes (T1D). Methods: Sources of DD were developed from qualitative interviews with 25 T1D adults and 10 diabetes health care providers. Survey items were then developed and analyzed using both exploratory (EFA) and confirmatory CFA) analyses on two patient samples. Construct validity was assessed by correlations with depressive symptoms (PHQ8), complications, HbA1C, BMI, and hypoglycemia worry scale (HWS). Scale cut-points were created using multiple regression. Results: An EFA with 305 U.S. participants yielded 7 coherent, reliable sources of distress that were replicated by a CFA with 109 Canadian participants: Powerlessness, Negative Social Perceptions, Physician Distress, Friend/Family Distress, Hypoglycemia Distress, Management Distress, Eating Distress. Prevalence of DD was high with 41.6% reporting at least moderate DD. Higher DD was reported for women, those with complications, poor glycemic control, younger age, without a partner, and non-White patients. Conclusions: We identified a profile of seven major sources of DD among T1D using a newly developed assessment instrument. The prevalence of DD is high and is related to glycemic control and several patient demographic and disease-related patient characteristics, arguing for a need to address DD in clinical care. (C) 2015 Elsevier Inc. All rights reserved.
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